ein,name,tax_period,posting_year,city,state,ntee_code,total_revenue,contributions,program_revenue,total_expenses,program_expenses,fundraising_expenses,salaries_total,highest_paid,highest_paid_name,employees,volunteers,donation_share_pct,program_ratio_pct
980407553,Foundation for Innovative New Diagnostics,2020-12-31,2021,Switzerland,,H80,98212578,97561319,0,91124840,84756952,0,14824765,404938,CATHARINA BOEHME,142,4,99.3,93.0
134128413,GLOBAL ALLIANCE FOR TB DRUG DEVELOPMENT INC,2020-12-31,2021,New York,NY,H80,61267452,60247338,0,61720389,56344597,964462,14748509,963760,DR MELVIN SPIGELMAN,51,8,98.3,91.3
911608978,INFECTIOUS DISEASE RESEARCH INSTITUTE,2020-12-31,2021,Seattle,WA,H80,13342560,3584439,10969518,19814751,12845363,0,6532666,397292,COREY CASPER,69,0,26.9,64.8
043462719,ALS THERAPY DEVELOPMENT FOUNDATION INC,2020-12-31,2021,Watertown,MA,H80,10248613,8062216,265315,9529307,8425564,278666,4424215,243145,FERNANDO VIEIRA,57,500,78.7,88.4
521840230,DIABETES RESEARCH AND WELLNESS,2020-12-31,2021,Bethesda,MD,H80,4958932,1589219,2883098,4080325,4025010,251078,521818,107400,ELIZABETH LAFRANCE,5,5,32.0,98.6
043237106,SILENT SPRING INSTITUTE INC,2020-06-30,2021,Newton,MA,H80,3971528,3814878,0,2981811,2321494,220003,2091538,159764,JULIA BRODY,24,18,96.1,77.9
201896813,SPRING POINT PROJECT,2020-12-31,2021,Minneapolis,MN,H80,2816791,6572,2790289,2687711,2451158,23985,1231589,195649,THOMAS SPIZZO,15,6,0.2,91.2
832498576,HAE International,2020-12-31,2021,Fairfax,VA,H80,2242659,1384323,846837,1717687,1703227,0,0,0,Beverly Yamomoto,0,20,61.7,99.2
020624051,New Mexico Cancer Care Alliance,2020-06-30,2021,Albuquerque,NM,H80,2197012,2090636,92500,2665372,2422517,0,990591,0,CHERYL WILLMAN MD,20,,95.2,90.9
472589708,AMYLOIDOSIS RESEARCH CONSORTIUM INC,2020-12-31,2021,Newton,MA,H80,2125459,1909160,7472,1233948,1020885,122311,629450,137869,ISABELLE LOUSADA,12,1,89.8,82.7
464322131,Cure Sanfilippo Foundation,2020-12-31,2022,Columbia,SC,H80,2083251,1840504,0,3140290,2910251,130644,432175,133211,Glenn O'Neill,4,120,88.3,92.7
273235008,CENTER FOR DISEASE DYNAMICS ECONOMICS & POLICY INC,2020-12-31,2021,Silver Spring,MD,H80,1977052,1958025,1043,2566199,2566199,0,1075233,286150,,13,5,99.0,100.0
455312680,LYSOSOMAL AND RARE DISORDERS RESEARCH,2020-12-31,2023,Fairfax,VA,H80,1934480,308000,1626009,2201912,2012839,0,1390943,498753,DR OZLEM GOKER ALPAN,18,3,15.9,91.4
912073087,PREECLAMPSIA FOUNDATION INC,2020-12-31,2021,Melbourne,FL,H80,1510355,889885,415619,1206049,996961,60121,322176,53028,ELENI TSIGAS,6,1000,58.9,82.7
273862623,THE ORPHAN DISEASE PATHWAY PROJECT,2020-12-31,2021,Miami Beach,FL,H80,1479904,1057210,0,1734442,1700000,0,0,0,GEORGE A WEISS,0,0,71.4,98.0
363847816,INTL ESSENTIAL TREMOR FOUNDATION,2020-03-31,2020,Lenexa,KS,H80,932509,849054,1753,628402,500430,40517,242022,102340,PATRICK MCCARTNEY,3,,91.1,79.6
852306010,EPIDEMIOLOGIC SOLUTIONS CORPORATION,2020-12-31,2023,Westlake,LA,H80,893214,1786429,0,0,,0,0,0,RONNIE GODEAUX,0,,200.0,
710874241,FOUNDATION TO ERADICATE DUCHENNE INC,2020-12-31,2021,Alexandria,VA,H80,836433,732763,0,643311,503988,76200,0,0,JOEL R WOOD,0,6,87.6,78.3
831415567,SLC6A1 CONNECT,2020-12-31,2021,Frisco,TX,H80,800954,792915,0,714151,609767,90533,0,0,AMBER FREED,0,200,99.0,85.4
363193655,CRAY MEDICAL RESEARCH FOUNDATION,2020-12-31,2021,Atchison,KS,H80,724833,90000,0,1486454,1239977,0,64977,0,PEONY ALLEN,0,,12.4,83.4
473408746,SWINE HEALTH INFORMATION CENTER INC,2020-12-31,2021,Manhattan,KS,H80,721612,602754,0,2434881,2346947,0,310998,260507,DR PAUL SUNDBERG,1,70,83.5,96.4
850529241,VENTI-NOW,2020-12-31,2022,Montgomery,OH,H80,634921,630800,0,369412,295493,2233,0,0,KRISTINE GROSS,0,5,99.4,80.0
562547779,NORTH EAST ALS CONSORTIUM INC,2020-12-31,2021,Boston,MA,H80,616014,6978,609036,487454,364676,9600,0,0,ROBERT H BROWNMD DPHIL,0,10,1.1,74.8
043478977,ANGEL FUND INC,2020-12-31,2021,Wakefield,MA,H80,586539,642244,0,522064,476805,10085,0,0,RICHARD P KENNEDY,0,50,109.5,91.3
043673104,PHELAN MCDERMID SYNDROME FOUNDATION,2020-12-31,2021,Osprey,FL,H80,560200,471225,15172,455390,228760,78307,333451,89015,Rhonda Blumenthal,11,50,84.1,50.2
760700153,AMERICAN PARTNERSHIP FOR EOSINOPHILIC DISORDERS,2020-12-31,2021,Atlanta,GA,H80,551192,267921,224000,370146,312390,19777,141550,82027,MARY JO STROBEL,3,,48.6,84.4
203214056,SENECA DIABETES FOUNDATION,2020-12-31,2021,Irving,NY,H80,476919,510,0,212710,47354,0,91269,45635,LUCILLE WHITE,0,0,0.1,22.3
851498806,CENTER FOR NEW DATA,2020-12-31,2021,Sacramento,CA,H80,458680,458680,0,168707,168707,0,0,27500,STEVEN DAVENPORT,0,200,100.0,100.0
200351832,CURED NFP,2020-12-31,2021,Northbrook,IL,H80,414053,398144,0,461921,459584,0,0,0,ELLYN KODROFF,0,25,96.2,99.5
812252111,AURUM INSTITUTE USA,2020-12-31,2021,New York,NY,H80,360965,151258,192509,333630,319250,0,314250,300296,BOB WALLIS,1,,41.9,95.7
843999202,CENTRAL NEW YORK LYME AND,2020-12-31,2021,Manlius,NY,H80,355048,354912,0,111346,105350,5729,69078,61654,ROYALE SCUDERI,1,16,100.0,94.6
342045354,THE FOCUS FOUNDATION INC,2020-12-31,2021,Davidsonville,MD,H80,285564,285023,0,670661,597340,0,499572,103840,DR CAROLE SPROUSE,15,30,99.8,89.1
461861913,Let Every Woman Know - Alaska,2020-12-31,2021,Anchorage,AK,H80,274381,274306,0,237844,214175,0,62452,0,Joanie Mayer Hope,1,40,100.0,90.0
311731986,SOCIETY FOR SURGERY OF THE,2020-12-31,2021,Beverly,MA,H80,249622,183051,0,146660,103098,0,0,0,JEFFREY B MATTHEWS MD,0,10,73.3,70.3
201232722,VIRGINIA DIABETES COUNCIL,2020-06-30,2021,Chesterfield,VA,H80,242016,241842,0,250366,250366,0,0,0,MELANIE BARTHLOW,0,,99.9,100.0
260641249,ELLYN SATTER INSTITUTE INC,2020-12-31,2021,Waukon,IA,H80,200645,46299,150649,162343,96032,0,93614,52098,ANNE BLOCKER,2,,23.1,59.2
814713372,MILA'S MIRACLE FOUNDATION,2020-12-31,2021,Longmont,CO,H80,194010,193610,0,791793,739206,11563,161559,100000,JULIA VITARELLO,2,,99.8,93.4
460661655,DEFEAT MSA ALLIANCE,2020-12-31,2021,St Clr Shores,MI,H80,164415,164411,0,98466,98466,0,0,0,PHILIP M FORTIER MA,0,100,100.0,100.0
471075307,THE LEO & ANNE ALBERT INSTITUTE FOR,2020-12-31,2021,Mission Hills,KS,H80,152246,150000,2200,93174,84994,0,0,0,JOHN A TAYLOR III,0,0,98.5,91.2
030467829,THE INTERNATIONAL RESEARCH FOUNDATION,2020-12-31,2021,Tampa,FL,H80,150842,42372,108470,239247,239247,0,15025,0,JAMES ALEXANDER,1,11,28.1,100.0
870813455,ALL GREATER GOOD FOUNDATION,2020-12-31,2021,San Diego,CA,H80,145000,145000,0,168025,133207,0,106850,99692,DR KATJA VAN HERLE,1,0,100.0,79.3
453248340,RAMPY MS RESEARCH FOUNDATION,2020-12-31,2021,Bentonville,AR,H80,92728,141395,0,162740,102664,27836,60024,0,SCOTT RAMPY,6,450,152.5,63.1
522164838,INTERNATIONAL SOCIETY FOR MANNOSIDOSIS,2020-12-31,2021,San Jose,CA,H80,68690,68638,0,76254,76254,0,0,0,PAM TOBEY,0,,99.9,100.0
311685893,KLEINE-LEVIN SYNDROME FOUNDATION IN,2020-12-31,2021,San Jose,CA,H80,60096,60069,0,36005,36005,0,0,0,DANI FARBER,0,15,100.0,100.0
860946851,AMERICAN FOUND FOR ADDICTION RESEARCH,2020-12-31,2021,Cave Creek,AZ,H80,52266,47266,5000,99753,74893,16854,0,0,Stefanie Carnes,0,,90.4,75.1
593824809,XERODERMA PIGMENTOSUM FAMILY,2020-12-31,2021,Sacramento,CA,H80,45563,22094,0,46788,32296,0,26396,24415,MICHELE MILOTA,1,50,48.5,69.0
811104933,ANN STEFFENS SCLERODERMA RESEARCH FOUNDATION INC,2020-12-31,2021,Wells,NY,H80,41331,41331,0,13099,10589,1700,0,0,LINDA MEENAN,0,,100.0,80.8
412155359,THE GEORGE POLLI FOUNDATION INC,2020-12-31,2021,Naples,FL,H80,33235,0,0,2384,2899,0,0,0,GREGORY POLLI,0,0,0.0,121.6
841714349,LYME DISEASE RESEARCH FOUNDATION INC,2020-12-31,2021,Lutherville,MD,H80,26224,26224,0,8631,6581,0,4000,0,ALEXANDER MASON,0,0,100.0,76.2
273427104,THE MATTHEW AND ANDREW AKIN FOUNDATION,2020-06-30,2021,Bridgeton,MO,H80,23292,16693,0,116568,112620,0,0,0,JUSTIN AKIN,0,4,71.7,96.6
522184099,DIABETES NATIONAL INSTITUTE INC,2020-12-31,2021,Chevy Chase,MD,H80,21433,21402,0,34649,31835,1125,0,0,MARIE HELLINGER,0,10,99.9,91.9
271450561,THYROID CANCER AND PARATHYROID,2020-12-31,2021,Lutz,FL,H80,13606,13606,0,5434,,0,0,0,GARY CLAYMAN MD,0,,100.0,
263256165,RHIZOKIDS INTERNATIONAL,2020-12-31,2021,Sylacauga,AL,H80,13421,11046,0,32377,,0,0,0,PATTI DAVIDSON,0,,82.3,
431695141,ASSOCIATION OF OSTEOBIOLOGY,2020-12-31,2021,Zionsville,IN,H80,3601,2780,0,3452,,0,0,0,NICOLA PARTRIDGE PHD PROFESSOR,0,0,77.2,
010682614,ORDWAY RESEARCH INSTITUTE INC,2020-06-30,2021,New York,NY,H80,1102,0,0,1595,,0,0,0,JANICE GRUBIN,0,0,0.0,
264440871,WJWU & LYNN INSTITUTE FOR STEM CELL RESEARCH,2020-12-31,2021,Santa Fe Spgs,CA,H80,0,0,0,0,,0,0,0,SHI-LUNG LIN,0,,,