ein,name,tax_period,posting_year,city,state,ntee_code,total_revenue,contributions,program_revenue,total_expenses,program_expenses,fundraising_expenses,salaries_total,highest_paid,highest_paid_name,employees,volunteers,donation_share_pct,program_ratio_pct
980407553,FOUNDATION FOR INNOVATIVE NEW DIAGNOSTICS,2023-12-31,2024,Switzerland,,H80,90612477,86961801,0,96117239,82029229,1244315,32721353,397275,,147,8,96.0,85.3
134128413,GLOBAL ALLIANCE FOR TB DRUG DEVELOPMENT INC,2023-12-31,2024,New York,NY,H80,60240486,49796816,0,55378579,48843533,1260040,17365566,921007,DR MELVIN SPIGELMAN,55,9,82.7,88.2
131866796,Parkinson's Foundation Inc,2023-06-30,2023,New York,NY,H80,48333484,47794248,0,48541314,39308989,6560910,17398149,505647,JOHN L LEHR,187,3150,98.9,81.0
911608978,ACCESS TO ADVANCED HEALTH INSTITUTE,2023-12-31,2024,Seattle,WA,H80,22776375,11574469,10631521,23815865,14626367,0,11489626,542213,COREY CASPER,89,6,50.8,61.4
043462719,ALS THERAPY DEVELOPMENT FOUNDATION INC,2023-12-31,2024,Watertown,MA,H80,11558482,10029574,657980,11160593,9880001,568158,4968144,320000,FERNANDO VIEIRA,63,500,86.8,88.5
832498576,HAE International,2023-12-31,2024,Fairfax,VA,H80,6004421,5833440,5175,4681824,4270400,0,0,0,Rachel Annals,0,20,97.2,91.2
043237106,SILENT SPRING INSTITUTE INC,2023-06-30,2024,Newton,MA,H80,5450719,5347913,0,4968836,4113512,340620,2469512,180054,JULIA BRODY PHD,31,18,98.1,82.8
273235008,CENTER FOR DISEASE DYNAMICS ECONOMICS &,2023-12-31,2024,Silver Spring,MD,H80,5416947,3311699,0,4295402,2697134,939856,989486,321003,RAMANAN LAXMINARAYAN,9,,61.1,62.8
201896813,SPRING POINT PROJECT,2023-12-31,2024,Minneapolis,MN,H80,3706775,6815,3360225,3249439,2979851,24394,1330675,211312,THOMAS SPIZZO,15,7,0.2,91.7
455312680,LYSOSOMAL AND RARE DISORDERS RESEARCH,2023-12-31,2024,Fairfax,VA,H80,3351390,491100,2860290,3676714,3332840,0,1694420,289151,DR OZLEM GOKER-ALPAN,26,3,14.7,90.6
991129959,HAIRDAO ASSOCIATION,2023-12-31,2025,West Palm Bch,FL,H80,3347133,3309384,0,346543,346543,0,65036,0,ANDREW BAKST,0,,98.9,100.0
320067668,CYSTINOSIS RESEARCH FOUNDATION,2023-06-30,2023,Irvine,CA,H80,3244975,2894123,0,2871720,2322732,310809,69358,0,NANCY J STACK,1,5,89.2,80.9
363193655,CRAY MEDICAL RESEARCH FOUNDATION,2023-12-31,2024,Atchison,KS,H80,3193918,2891132,0,989180,596737,0,39862,0,PEONY ALLEN,12,,90.5,60.3
473408746,SWINE HEALTH INFORMATION CENTER INC,2023-12-31,2024,Manhattan,KS,H80,3159430,2887030,0,2899887,2805148,0,669372,310826,DR PAUL SUNDBERG,2,75,91.4,96.7
521840230,DIABETES RESEARCH AND WELLNESS,2023-12-31,2024,Bethesda,MD,H80,3108406,1229851,1322838,2645426,2178248,218177,375972,95345,ANDREA STANCIK,4,2,39.6,82.3
472589708,AMYLOIDOSIS RESEARCH CONSORTIUM INC,2023-12-31,2024,Newton,MA,H80,2888025,2702741,1525,2415059,1548608,524772,1497962,178365,ISABELLE LOUSADA,17,0,93.6,64.1
912073087,PREECLAMPSIA FOUNDATION INC,2023-12-31,2024,Melbourne,FL,H80,2164264,1468731,449644,1681501,1317870,115916,674556,90670,ELENI TSIGAS,14,500,67.9,78.4
464322131,Cure Sanfilippo Foundation,2023-12-31,2024,Columbia,SC,H80,2106392,1746032,0,1292685,1035486,139166,525974,136354,Glenn O'Neill,4,,82.9,80.1
363847816,INTL ESSENTIAL TREMOR FOUNDATION,2023-03-31,2023,Lenexa,KS,H80,2020359,1797462,26390,825598,683789,43198,293121,112000,PATRICK MCCARTNEY,3,,89.0,82.8
921211076,Pennys Flight Foundation Inc,2023-12-31,2024,Glen Cove,NY,H80,1683901,1651262,0,1316319,679840,337683,82891,77000,Katherine Doerge,1,,98.1,51.6
020624051,New Mexico Cancer Research Alliance,2023-06-30,2024,Albuquerque,NM,H80,1431885,1220450,195713,1572648,519514,0,33626,0,MICHELE GOODMAN,1,,85.2,33.0
562547779,NORTH EAST ALS CONSORTIUM INC,2023-12-31,2025,Boston,MA,H80,1347482,7982,1339500,1069037,825377,15787,0,0,ROBERT H BROWNMD DPHIL,0,0,0.6,77.2
463166721,SPIROVATION INC,2023-12-31,2024,Chapel Hill,NC,H80,1294210,0,1294210,1301356,1301356,0,18750,18750,WAYNE ANDERSON,0,2,0.0,100.0
473313670,THE NATIONAL DIABETES AND OBESITY,2023-06-30,2024,Diamondhead,MS,H80,1138528,743423,386729,866008,772232,31992,470507,297013,STEPHEN FARROW,0,0,65.3,89.2
043673104,PHELAN MCDERMID SYNDROME FOUNDATION,2023-12-31,2024,Osprey,FL,H80,1062761,834914,110073,1098819,807593,126130,521790,116269,Rhonda Blumenthal,11,50,78.6,73.5
863875913,Sleep Consortium Inc,2023-12-31,2024,West Palm Bch,FL,H80,966500,966500,0,882857,878097,0,156999,68750,Lindsay E Jesteadt,2,50,100.0,99.5
862299450,CHORD FOUNDATION,2023-12-31,2024,New Hyde Park,NY,H80,842917,824830,0,450781,446574,0,0,0,JOHN INGRAM,0,6,97.9,99.1
710874241,FOUNDATION TO ERADICATE DUCHENNE INC,2023-12-31,2024,Alexandria,VA,H80,826783,834048,0,639710,467352,96961,0,0,JOEL WOOD,0,7,100.9,73.1
461861913,Let Every Woman Know - Alaska,2023-12-31,2024,Anchorage,AK,H80,820039,815493,0,813149,785270,0,103782,0,Joanie Mayer Hope,2,75,99.4,96.6
200842877,Behavioral Diabetes Institute,2023-06-30,2024,San Diego,CA,H80,784943,739543,0,600434,,0,182606,128612,William H Polonsky PHD,1,,94.2,
830524110,Punches 4 Parkinsons,2023-12-31,2025,Walpole,MA,H80,782766,0,782766,776656,22349,395272,101061,48058,RYAN J ROACH,0,,0.0,2.9
760700153,AMERICAN PARTNERSHIP FOR EOSINOPHILIC DISORDERS,2023-12-31,2024,Atlanta,GA,H80,776844,657368,117000,743574,692234,9513,167081,93534,MARY JO STROBEL,3,,84.6,93.1
812252111,AURUM INSTITUTE USA,2023-12-31,2024,New York,NY,H80,717971,438797,245985,676888,656150,0,356845,340908,ROBERT WALLIS,1,,61.1,96.9
342045354,THE FOCUS FOUNDATION INC,2023-12-31,2024,Davidsonville,MD,H80,703148,747358,0,797459,695695,0,514394,128418,CAROLE SAMANGO-SPROUSE,19,40,106.3,87.2
043478977,ANGEL FUND INC,2023-12-31,2024,Wakefield,MA,H80,702162,816169,0,787196,711254,15458,0,0,RICHARD P KENNEDY,0,50,116.2,90.4
831415567,SLC6A1 CONNECT,2023-12-31,2024,Frisco,TX,H80,676629,526043,59500,1264542,1051148,85136,108385,99999,AMBER FREED,1,200,77.7,83.1
200351832,CURED NFP,2023-12-31,2024,Northbrook,IL,H80,540978,457763,0,508204,498841,2410,9688,6000,ELLYN KODROFF,2,25,84.6,98.2
810769799,CDG CARE,2023-12-31,2024,Colorado Spgs,CO,H80,491830,486633,0,525673,524020,0,0,0,ANDREA MILLER,0,0,98.9,99.7
922280592,Dion Foundation for Children with Rare Diseases Inc,2023-12-31,2024,Marshfield,MA,H80,468167,468167,0,133325,72749,46747,0,0,Courtney P,0,15,100.0,54.6
880987512,MONOAMINE OXIDASE DEFICIENCY FOUNDATION,2023-12-31,2024,Galveston,TX,H80,414965,412309,0,416221,415621,0,0,0,BARBARA SASSER,0,0,99.4,99.9
383225425,ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC,2023-06-30,2023,Southfield,MI,H80,349997,115270,0,198796,95735,0,0,0,Katelyn Wilson,0,100,32.9,48.2
311731986,SOCIETY FOR SURGERY OF THE,2023-12-31,2024,Beverly,MA,H80,346655,170198,13550,248339,192874,35,0,0,STANLEY W ASHLEY MD FACS,0,10,49.1,77.7
843999202,CENTRAL NEW YORK LYME AND,2023-12-31,2024,Manlius,NY,H80,343319,318121,0,378556,287998,27130,238354,98784,ROYALE SCUDERI,4,10,92.7,76.1
824203898,Meningitis Foundation,2023-12-31,2024,Minneapolis,MN,H80,259203,215211,43410,203300,203167,0,0,0,David Boulware,0,3,83.0,99.9
263006397,ERASE PTSD NOW,2023-12-31,2024,Chicago,IL,H80,243859,252582,0,937747,875762,31501,102268,95000,COLEEN LACOSTA,1,50,103.6,93.4
455170308,DYSLEXIC ADVANTAGE,2023-12-31,2024,Edmonds,WA,H80,232482,165268,67414,150169,105882,5793,99928,0,JOAN BISAGNO,1,12,71.1,70.5
201232722,VIRGINIA DIABETES COUNCIL,2023-06-30,2024,Chesterfield,VA,H80,223692,223561,0,202612,202612,0,0,0,MELANIE BARTHLOW,0,,99.9,100.0
460661655,DEFEAT MSA ALLIANCE,2023-12-31,2024,St Clr Shores,MI,H80,201953,201947,0,125529,113350,0,0,0,PHILIP M FORTIER MA,0,,100.0,90.3
260641249,ELLYN SATTER INSTITUTE INC,2023-12-31,2024,Waukon,IA,H80,177548,37673,128956,176913,119947,250,106018,58619,ANNE BLOCKER,2,,21.2,67.8
331043399,PROPIONIC ACIDEMIA FOUNDATION,2023-07-31,2023,Deerfield,IL,H80,172394,165533,0,190005,183392,4117,0,0,Jill Chertow Franks,0,10,96.0,96.5
043395604,THE PRAY FAMILY FOUNDATION,2023-12-31,2024,Seekonk,MA,H80,170081,0,0,126193,126193,0,0,0,SCOTT PRAY,0,0,0.0,100.0
811104933,ANN STEFFENS SCLERODERMA RESEARCH FOUNDATION INC,2023-12-31,2024,Wells,NY,H80,170019,170019,0,66430,58774,6576,0,0,BRUCE COWAN,0,,100.0,88.5
203214056,SENECA DIABETES FOUNDATION,2023-12-31,2024,Irving,NY,H80,167496,75,0,232465,73626,0,97673,48989,LUCILLE WHITE,0,,0.0,31.7
273862623,THE ORPHAN DISEASE PATHWAY PROJECT,2023-12-31,2024,Miami Beach,FL,H80,160035,160033,0,5425,,0,0,0,GEORGE A WEISS,0,0,100.0,
453248340,RAMPY MS RESEARCH FOUNDATION,2023-12-31,2024,Bentonville,AR,H80,154261,292118,0,193564,106242,52912,82700,65000,SCOTT RAMPY,3,300,189.4,54.9
870813455,ALL GREATER GOOD FOUNDATION,2023-12-31,2024,San Diego,CA,H80,130726,130726,0,132553,116436,0,103344,96000,DR KATJA VAN HERLE,1,0,100.0,87.8
851498806,CENTER FOR NEW DATA,2023-12-31,2024,Sacramento,CA,H80,117322,117322,0,513395,298718,62393,262957,56190,JACQUELINE EDWARDS,4,,100.0,58.2
522164838,INTERNATIONAL SOCIETY FOR MANNOSIDO,2023-12-31,2024,San Jose,CA,H80,95006,95006,0,96907,96907,0,0,0,CAROLYN PAISLEY-DEW,0,,100.0,100.0
030467829,INTERNATIONAL RESEARCH FOUNDATION FOR RSDCRSPS INC,2023-12-31,2024,Tampa,FL,H80,87647,8004,79539,211507,211507,0,43758,0,RICHARD HOFFMAN,2,11,9.1,100.0
593824809,XERODERMA PIGMENTOSUM FAMILY,2023-12-31,2024,Sacramento,CA,H80,78470,37974,0,50199,43472,0,27024,25000,MICHELE MILOTA,1,50,48.4,86.6
311685893,KLEINE-LEVIN SYNDROME FOUNDATION IN,2023-12-31,2024,San Jose,CA,H80,62357,62165,0,44340,44340,0,0,0,DANI FARBER,0,10,99.7,100.0
811547477,OXFENDAZOLE DEVELOPMENT GROUP,2023-12-31,2024,Blue Bell,PA,H80,58517,8471,0,604664,592368,0,0,0,R John Horton,0,0,14.5,98.0
461357012,MIND FIRST FOUNDATION,2023-12-31,2024,Weston,MA,H80,51988,1563,0,489788,342552,0,416492,198000,PRESTON W ESTEP III,4,0,3.0,69.9
471075307,THE LEO & ANNE ALBERT INSTITUTE FOR,2023-12-31,2024,Mission Hills,KS,H80,49546,0,49535,150130,144030,0,0,0,JOHN A TAYLOR III,0,0,0.0,95.9
263256165,RHIZOKIDS INTERNATIONAL,2023-12-31,2024,Sylacauga,AL,H80,41245,41180,0,40056,40056,0,0,0,PATTI DAVIDSON,0,,99.8,100.0
884366504,MYCOBACTERIUM DX RESEARCH LAB INC,2023-12-31,2024,Carlsbad,CA,H80,40834,0,0,1920,,0,0,0,Kunhua Chen,0,1,0.0,
852306010,EPIDEMIOLOGIC SOLUTIONS CORPORATION,2023-12-31,2024,Westlake,LA,H80,22234,1148591,0,469188,458868,0,0,0,RONNIE GODEAUX,0,,5165.9,97.8
261359425,NEW JERSEY RETT SYNDROME ASSOCIATIO,2023-06-30,2024,Freehold,NJ,H80,21485,21485,0,45829,42000,0,0,0,CARLA BENETATOS,0,,100.0,91.6
522184099,DIABETES NATIONAL INSTITUTE INC,2023-12-31,2024,Chevy Chase,MD,H80,20981,20929,0,65879,63191,0,0,0,MARIE HELLINGER,0,10,99.8,95.9
431695141,ASSOCIATION OF OSTEOBIOLOGY,2023-12-31,2024,Zionsville,IN,H80,13420,13420,0,9507,7994,513,0,0,NICOLA PARTRIDGE PHD PROFESSOR,0,0,100.0,84.1
271450561,THYROID CANCER AND PARATHYROID,2023-12-31,2024,Lutz,FL,H80,4546,4546,0,24419,20000,0,0,0,GARY CLAYMAN MD,0,,100.0,81.9
461315223,AMERICAN YOUTH OBESITY RESEARCH &,2023-09-30,2023,Ontario,CA,H80,20,20,0,3000,,0,0,0,CRAIG SCOTT GALPER,0,,100.0,
264440871,WJWU & LYNN INSTITUTE FOR STEM CELL RESEARCH,2023-12-31,2024,Santa Fe Spgs,CA,H80,0,0,0,0,,0,0,0,SHI-LUNG LIN,0,,,
412155359,THE GEORGE POLLI FOUNDATION INC,2023-12-31,2024,Naples,FL,H80,0,0,0,2874,,0,0,0,GREGORY POLLI,0,0,,