ein,name,tax_period,posting_year,city,state,ntee_code,total_revenue,contributions,program_revenue,total_expenses,program_expenses,fundraising_expenses,salaries_total,highest_paid,highest_paid_name,employees,volunteers,donation_share_pct,program_ratio_pct
134128413,GLOBAL ALLIANCE FOR TB DRUG DEVELOPMENT INC,2024-12-31,2025,New York,NY,H80,63732557,52737212,0,61508783,54417744,1357698,17962003,939703,DR MELVIN SPIGELMAN,50,11,82.7,88.5
131866796,Parkinson's Foundation Inc,2024-06-30,2024,New York,NY,H80,55962188,53846552,0,51977272,43260233,6468694,19423185,455559,JOHN L LEHR,188,3400,96.2,83.2
980407553,FOUNDATION FOR INNOVATIVE NEW DIAGNOSTICS,2024-12-31,2025,Switzerland,,H80,49306331,46591810,0,56828646,46121006,696099,20548195,342536,DARRYL ENGLISH,227,3,94.5,81.2
911608978,ACCESS TO ADVANCED HEALTH INSTITUTE,2024-12-31,2026,Seattle,WA,H80,18401417,12565690,4362466,35765271,12812553,0,11280651,634562,CANDICE DECAIRE,89,8,68.3,35.8
043462719,ALS THERAPY DEVELOPMENT FOUNDATION INC,2024-12-31,2025,Watertown,MA,H80,13406171,11328179,1312529,12879065,11714119,620667,5595580,386901,FERNANDO VIEIRA,59,500,84.5,91.0
832498576,HAE International,2024-12-31,2025,Fairfax,VA,H80,6614500,6358144,2360,4728926,4472162,0,0,0,Sarah Smith Foltz,0,20,96.1,94.6
852306010,EPIDEMIOLOGIC SOLUTIONS CORPORATION,2024-12-31,2025,Westlake,LA,H80,4663007,356736,0,1779017,1739349,0,0,0,RONNIE GODEAUX,0,,7.7,97.8
043237106,SILENT SPRING INSTITUTE INC,2024-06-30,2025,Newton,MA,H80,4628565,4493342,0,5088473,3946913,450965,3014681,181977,JULIA BRODY PHD,31,0,97.1,77.6
455312680,LYSOSOMAL AND RARE DISORDERS RESEARCH,2024-12-31,2025,Fairfax,VA,H80,4423059,501823,3921232,3741763,3375250,14550,1834816,318291,DR OZLEM GOKER-ALPAN,26,5,11.3,90.2
273235008,CENTER FOR DISEASE DYNAMICS ECONOMICS &,2024-12-31,2025,Silver Spring,MD,H80,3712319,2243936,0,3582607,3160625,0,803757,331418,Ramanan Laxminarayan,8,,60.4,88.2
201896813,SPRING POINT PROJECT,2024-12-31,2025,Minneapolis,MN,H80,3653866,2905,3522919,3612196,3310363,23935,1523468,206380,THOMAS SPIZZO,18,7,0.1,91.6
473408746,SWINE HEALTH INFORMATION CENTER INC,2024-12-31,2025,Manhattan,KS,H80,3435828,3112138,0,3254742,3165792,0,620111,269674,DR MEGAN NIEDERWERDER,3,85,90.6,97.3
472589708,AMYLOIDOSIS RESEARCH CONSORTIUM INC,2024-12-31,2025,Newton,MA,H80,3366811,3177624,70080,3016006,2353843,375533,2021784,175000,ISABELLE LOUSADA,20,0,94.4,78.0
320067668,CYSTINOSIS RESEARCH FOUNDATION,2024-06-30,2024,Irvine,CA,H80,3187305,2739787,0,4157212,3690815,232872,67946,0,NANCY J STACK,1,5,86.0,88.8
521840230,DIABETES RESEARCH AND WELLNESS,2024-12-31,2025,Bethesda,MD,H80,3182818,1147490,1492494,3081292,2706982,145841,384438,97292,ANDREA STANCIK,4,2,36.1,87.9
912073087,PREECLAMPSIA FOUNDATION INC,2024-12-31,2025,Melbourne,FL,H80,3048206,1285422,1123133,2627476,2218029,141711,987338,92484,ELENI TSIGAS,20,1000,42.2,84.4
464322131,Cure Sanfilippo Foundation,2024-12-31,2025,Columbia,SC,H80,2781149,2221552,0,1572959,1259871,146325,630558,139049,Glenn O'Neill,5,,79.9,80.1
263006397,ERASE PTSD NOW,2024-12-31,2025,Chicago,IL,H80,2126795,2116279,0,1462218,1272323,54372,108745,99583,COLLEN LACOSTA,1,100,99.5,87.0
020624051,New Mexico Cancer Research Alliance,2024-06-30,2025,Albuquerque,NM,H80,2073590,1859681,195713,1999782,862824,0,36004,0,MICHELE GOODMAN,1,,89.7,43.1
562547779,NORTH EAST ALS CONSORTIUM INC,2024-12-31,2025,Boston,MA,H80,2066070,1107241,954412,554594,298146,12604,0,0,ROBERT H BROWNMD DPHIL,0,11,53.6,53.8
921211076,Pennys Flight Foundation Inc,2024-12-31,2025,Glen Cove,NY,H80,2062467,1950586,0,1046844,355188,586300,201302,132000,Katherine Doerge,1,,94.6,33.9
830524110,Punches 4 Parkinsons,2024-12-31,2025,Walpole,MA,H80,1891937,0,1891937,1881196,68829,149046,106176,49000,RYAN J ROACH,0,,0.0,3.7
363193655,CRAY MEDICAL RESEARCH FOUNDATION,2024-12-31,2025,Atchison,KS,H80,1541946,198833,0,1278486,913966,0,51466,0,PEONY ALLEN,14,,12.9,71.5
043673104,PHELAN MCDERMID SYNDROME FOUNDATION,2024-12-31,2025,Osprey,FL,H80,1306884,1084905,67727,1437564,1108324,146281,574741,122244,Rhonda Blumenthal,15,50,83.0,77.1
710874241,FOUNDATION TO ERADICATE DUCHENNE INC,2024-12-31,2025,Alexandria,VA,H80,1102169,772781,0,827891,653952,96878,0,0,JOEL WOOD,0,7,70.1,79.0
463166721,SPIROVATION INC,2024-12-31,2025,Chapel Hill,NC,H80,1074263,0,1074263,925294,925294,0,20000,20000,WAYNE ANDERSON,0,2,0.0,100.0
273862623,THE ORPHAN DISEASE PATHWAY PROJECT,2024-12-31,2025,Miami Beach,FL,H80,1045050,1045049,0,3460,,0,0,0,GEORGE A WEISS,0,0,100.0,
812252111,AURUM INSTITUTE USA,2024-12-31,2025,New York,NY,H80,1021027,600000,400978,1001912,892796,0,409632,348126,DR ROBERT WALLIS,1,0,58.8,89.1
880987512,MONOAMINE OXIDASE DEFICIENCY FOUNDATION,2024-12-31,2025,Galveston,TX,H80,920729,917330,0,740669,739794,0,0,0,BARBARA SASSER,0,0,99.6,99.9
043478977,ANGEL FUND INC,2024-12-31,2025,Wakefield,MA,H80,895977,944257,0,778474,750000,11620,0,0,RICHARD P KENNEDY,0,50,105.4,96.3
900535639,ZEENAT QURESHI STROKE INSTITUTE,2024-12-31,2025,Johns Creek,GA,H80,855877,855877,0,148266,136704,0,10170,0,ADNAN QURESHI,0,4,100.0,92.2
363847816,INTL ESSENTIAL TREMOR FOUNDATION,2024-03-31,2024,Lenexa,KS,H80,820747,564041,26610,904730,752146,44791,310637,0,PATRICK M REIDY,3,,68.7,83.1
342045354,THE FOCUS FOUNDATION INC,2024-12-31,2025,Davidsonville,MD,H80,795002,832696,0,613517,531718,0,435571,120528,CAROLE SAMANGO-SPROUSE,11,40,104.7,86.7
922280592,Dion Foundation for Children with Rare Diseases Inc,2024-12-31,2025,Marshfield,MA,H80,776008,776008,0,937344,906035,0,0,0,Courtney P,0,15,100.0,96.7
760700153,AMERICAN PARTNERSHIP FOR EOSINOPHILIC DISORDERS,2024-12-31,2025,Atlanta,GA,H80,743536,741494,0,818386,771110,16132,212244,97921,MARY JO STROBEL,5,,99.7,94.2
991129959,HAIRDAO ASSOCIATION,2024-12-31,2025,West Palm Bch,FL,H80,738425,9831,0,1519872,1519872,0,69260,0,ANDREW VERBINNEN,0,,1.3,100.0
831415567,SLC6A1 CONNECT,2024-12-31,2025,Frisco,TX,H80,716694,556360,65834,679506,600083,53518,107649,99999,AMBER FREED,1,15,77.6,88.3
814713372,MILA'S MIRACLE FOUNDATION,2024-12-31,2025,Longmont,CO,H80,706872,706839,0,493007,443334,11949,200181,113470,JULIA VITARELLO,2,,100.0,89.9
863875913,Sleep Consortium Inc,2024-12-31,2025,West Palm Bch,FL,H80,665000,665000,0,477698,471526,0,169373,81250,Lindsay E Jesteadt,2,50,100.0,98.7
810769799,CDG Care,2024-12-31,2025,Colorado Spgs,CO,H80,531003,501763,12255,344137,304585,13884,17037,13462,Andrea Miller,1,10,94.5,88.5
030467829,INTERNATIONAL RESEARCH FOUNDATION FOR RSDCRSPS INC,2024-12-31,2026,Tampa,FL,H80,526861,283039,243724,270975,249376,0,54831,0,RICHARD HOFFMAN,2,11,53.7,92.0
843999202,CENTRAL NEW YORK LYME AND,2024-12-31,2025,Manlius,NY,H80,486936,457104,0,412413,308414,49628,303835,104000,ROYALE SCUDERI,5,28,93.9,74.8
200351832,CURED NFP,2024-12-31,2025,Northbrook,IL,H80,465036,377956,0,566364,552697,3156,38754,24000,ELLYN KODROFF,2,20,81.3,97.6
824203898,Meningitis Foundation,2024-12-31,2025,Minneapolis,MN,H80,463834,75035,387036,133168,132817,0,0,0,David Boulware,0,3,16.2,99.7
200842877,Behavioral Diabetes Institute,2024-06-30,2025,San Diego,CA,H80,450812,412629,0,821533,,0,321343,222395,William H Polonsky PHD,2,,91.5,
473313670,THE NATIONAL DIABETES AND OBESITY,2024-06-30,2025,Diamondhead,MS,H80,429675,429658,0,740683,669173,19402,348006,147326,STEPHEN FARROW,0,0,100.0,90.3
810876180,A LONG SWIM,2024-12-31,2025,Barrington,IL,H80,373936,373936,0,315910,315910,0,0,0,BRENTEN BLAKEMAN,0,,100.0,100.0
471075307,THE LEO & ANNE ALBERT INSTITUTE FOR,2024-12-31,2025,Mission Hills,KS,H80,361531,249109,85758,67725,63453,0,0,0,JOHN A TAYLOR III,0,0,68.9,93.7
461861913,Let Every Woman Know - Alaska,2024-12-31,2025,Anchorage,AK,H80,340522,338689,0,336285,290939,0,158117,0,Joanie Mayer Hope,2,75,99.5,86.5
383225425,ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC,2024-06-30,2024,Southfield,MI,H80,323263,197687,0,220502,153556,0,0,0,Lynn Egan,0,150,61.2,69.6
311731986,SOCIETY FOR SURGERY OF THE,2024-12-31,2025,Beverly,MA,H80,313920,135429,18900,346194,288089,0,0,0,STANLEY W ASHLEY MD FACS,0,10,43.1,83.2
933881844,WILL HARDY FOUNDATION,2024-12-31,2025,Henrico,VA,H80,289977,168893,0,2135,2135,0,0,0,ANDREW ISAAC BIRDSONG,0,,58.2,100.0
203214056,SENECA DIABETES FOUNDATION,2024-12-31,2025,Irving,NY,H80,288181,600,0,294426,108849,0,101112,50556,MICHAEL R MILITELLO,0,,0.2,37.0
223640093,The Field Center,2024-06-30,2025,Montclair,NJ,H80,244722,2100,242622,243786,227235,0,5280,0,Sheryl Field,0,,0.9,93.2
860946851,AMERICAN FOUND FOR ADDICTION RESEARCH,2024-12-31,2025,Cave Creek,AZ,H80,218815,213960,4855,235660,143302,4515,37764,0,Janie Lacy,1,,97.8,60.8
993644250,COUNTDOWN FOR A CURE INC,2024-12-31,2025,Atlanta,GA,H80,209420,209420,0,64334,54614,0,6486,0,MITZI SOLOMON,1,,100.0,84.9
453248340,RAMPY MS RESEARCH FOUNDATION,2024-12-31,2025,Bentonville,AR,H80,197319,333189,0,202371,146126,26701,63742,58690,SCOTT RAMPY,2,364,168.9,72.2
862299450,CHORD FOUNDATION,2024-12-31,2025,New Hyde Park,NY,H80,189829,159980,0,104852,89973,0,0,0,JOHN INGRAM,0,,84.3,85.8
460661655,DEFEAT MSA ALLIANCE,2024-12-31,2025,St Clr Shores,MI,H80,171973,171943,0,136323,119696,0,0,0,PHILIP M FORTIER MA,0,,100.0,87.8
260641249,ELLYN SATTER INSTITUTE INC,2024-12-31,2025,Waukon,IA,H80,169831,32165,130915,194962,141601,0,116208,60306,ANNE BLOCKER,2,,18.9,72.6
851498806,CENTER FOR NEW DATA,2024-12-31,2025,Sacramento,CA,H80,166033,165652,0,318007,205000,65681,108360,0,DOUG FRIDSMA MD PHD,4,,99.8,64.5
372120626,RENEGADE RESEARCH,2024-12-31,2025,Brighton,MI,H80,159837,159837,0,134050,125823,0,0,0,ISABEL BURNETT,0,30,100.0,93.9
271450561,THYROID CANCER AND PARATHYROID,2024-12-31,2025,Lutz,FL,H80,152551,152551,0,26297,20000,0,0,0,GARY CLAYMAN MD,0,,100.0,76.1
331043399,PROPIONIC ACIDEMIA FOUNDATION,2024-07-31,2024,Deerfield,IL,H80,145957,119441,0,123551,116936,4269,0,0,Jill Chertow Franks,0,,81.8,94.6
455170308,DYSLEXIC ADVANTAGE,2024-12-31,2025,Edmonds,WA,H80,142645,98002,45193,103386,64872,3606,64043,36000,FERNETTE EIDE,1,12,68.7,62.7
843216292,PRIMARY ALDOSTERONISM FOUNDATION,2024-12-31,2025,Phoenix,AZ,H80,85863,80392,5405,72337,55704,3120,0,0,MARIANNE LEENAERTS,0,14,93.6,77.0
593824809,XERODERMA PIGMENTOSUM FAMILY SUPPORT,2024-12-31,2025,Sacramento,CA,H80,85358,71481,0,146798,137002,0,27024,25000,MICHELE MILOTA,1,50,83.7,93.3
461357012,MIND FIRST FOUNDATION,2024-12-31,2025,Weston,MA,H80,58286,635,0,579053,404924,0,479482,232667,PRESTON W ESTEP III,4,0,1.1,69.9
811104933,ANN STEFFENS SCLERODERMA RESEARCH FOUNDATION INC,2024-12-31,2025,Wells,NY,H80,52694,52694,0,80147,73606,6541,0,0,AMY GIETZEN,0,,100.0,91.8
263256165,RHIZOKIDS INTERNATIONAL,2024-12-31,2025,Sylacauga,AL,H80,49782,49207,0,48492,41396,1344,0,0,TRACEY C THOMAS,0,,98.8,85.4
522164838,INTERNATIONAL SOCIETY FOR MANNOSIDO,2024-12-31,2025,San Jose,CA,H80,43322,43322,0,56081,56081,0,0,0,CAROLYN PAISLEY-DEW,0,,100.0,100.0
884366504,MYCOBACTERIUM DX RESEARCH LAB INC,2024-12-31,2025,Carlsbad,CA,H80,41238,0,0,157601,153865,0,151099,74517,Nan Liu,2,,0.0,97.6
201232722,VIRGINIA DIABETES COUNCIL,2024-06-30,2025,Chesterfield,VA,H80,33772,33607,0,62948,62948,0,0,0,MELANIE BARTHLOW,0,,99.5,100.0
311685893,KLEINE-LEVIN SYNDROME FOUNDATION INC,2024-12-31,2025,San Jose,CA,H80,30450,30222,0,59843,58143,1700,30705,0,DANI FARBER,1,10,99.3,97.2
261359425,NEW JERSEY RETT SYNDROME ASSOCIATIO,2024-06-30,2025,Freehold,NJ,H80,29783,15273,0,5705,,0,0,0,CARLA BENETATOS,0,,51.3,
043395604,THE PRAY FAMILY FOUNDATION,2024-12-31,2025,Seekonk,MA,H80,27170,0,0,155279,155279,0,0,0,SCOTT PRAY,0,0,0.0,100.0
811547477,OXFENDAZOLE DEVELOPMENT GROUP,2024-12-31,2025,Blue Bell,PA,H80,23366,869,0,851968,850262,0,0,0,R John Horton,0,5,3.7,99.8
522184099,DIABETES NATIONAL INSTITUTE INC,2024-12-31,2025,Chevy Chase,MD,H80,23249,23213,0,41008,38404,0,0,0,MARIE HELLINGER,0,10,99.8,93.7
710916234,ADENOID CYSTIC CARCINOMA ORGANIZATION INT'L,2024-12-31,2025,San Francisco,CA,H80,20305,8239,0,11679,8137,0,0,0,PASCALE REICH,0,3,40.6,69.7
431695141,ASSOCIATION OF OSTEOBIOLOGY,2024-12-31,2025,Zionsville,IN,H80,13445,13445,0,13419,11699,349,0,0,THERESA GUISE MD,0,0,100.0,87.2
934097416,NYPC FOUNDATION INC,2024-12-31,2025,New York,NY,H80,0,0,0,0,,0,0,0,James Geraghty,0,,,
412155359,THE GEORGE POLLI FOUNDATION INC,2024-12-31,2025,Naples,FL,H80,0,0,0,3271,,0,0,0,GREGORY POLLI,0,0,,